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Tuesday, 05 February 2008

Thursday, 15 March 2007

  •  

     Nan and Ralph

    IN LOVING MEMORY

    NAN E. MILLEN

    DEC. 27, 1946—MAR 8, 2007

     

    I know it has been awhile since my last entry and there are many updates that I should tell all the wonderful people who have formed my support group, but please bare with me as this entry may help me lift the weight off of my heavy heart, and it is not about me.  I am grateful for this opportunity to be alone and to reflect. I am sitting in a motel on the NY/MA border, a little over half way on my trip back to NH. On Friday I received a call to tell me that my dear sweet friend Nan had passed on. I know I have written about her before in this journal, but I just have the need to say more about her.  The last time I saw her was when they came to visit me last summer. At the time she was so sick with horribly painful phlebitis in her legs and a cold that seemed like pneumonia to me. However…being the friend that she was, she insisted on stopping to see me when she visited her brother Steve in Maine.  She was much sicker than I was, but she had to make sure I was okay.  That was Nan.  Her husband Ralph abided by her wishes and was always “just there” for her, as he was during the whole 37 years of their marriage. When I got the call that she was gone, it was a no brainer for me to find a suitcase and be there. I only had one response to the people that said to me “I can’t believe you drove all this way alone to be here.”  All I could say was NAN WOULD HAVE DONE THE SAME FOR ME.  The wake at the funeral home was so beautiful and every little detail seemed to be thought of. There were afghans and beautiful little dresses that she had made before her stroke 12 years ago. There were things she had accomplished since then, like “ The story of Nan” that she had dictated to her teacher when she was trying so hard to learn to read again.  She generously gave me a copy of that, so I had it with me in my car in case anyone forgot. Nothing was forgotten. Her story was there on a table.  She looked so beautiful and soooo pain free. That was a comfort. Ralph was the Prince he had always been where Nan was concerned. I was honored when I arrived at the church for the services and Ralph met me at my car and we walked into the church arm in arm. Nan must have been so happy about that. Through the whole thing he carried himself with dignity and love, continuing to be that one of a kind man that Nan loved so much.  During the service the congregation sang “How Great Thou Art”. So totally what I needed, as Nan and I used to sing that as teenagers in the little Burke Hill Church for the “Special music” for the day. Actually, Nan was the special music and I worried about remembering the words. She did the harmony, and even harmonized when I was off key. Come to think of it, that is the same way I passed Trig and Latin in high school. Nan “shifted gears” to help me “get it”.  She was so smart and never flaunted it or let on to anyone else that she had to “pull me up by my boot straps” when I would get lost academically and had failing grades in my future. She was “always there” as she was for so many people throughout her life.  There were masses that attended the wake and the church service and the fellowship luncheon after. Just an indication of how many people whose lives she had blessed.  Nan moved to our neighborhood (good old Burke Hill Road) when we were in the 5th grade.  For some reason, (God’s purpose I guess) we became fast friends. Our fathers were both farmers and we lived about a mile or two apart on Burke Hill. In those days, when kids wanted to get together, there was no “meet ya at the Mall” or “call my cell” or “see ya in the chat room”.  In those days, we asked our Moms if we could get together, and once it was cleared, we started walking, saying to each other “I’ll meet you half way”.  We would set out on that old country road and eventually I would see her way off in the distance and as we got closer to each other we walked faster. We never did determine where “half way” was, because each time we would meet face to face at a different place on that road. I remember one time I decided that I would make the decision as to where the half way point was. I walked real fast towards Nan’s house, while she walked at a normal pace. When we met, I told her from now on THIS SPOT would be half way. Nan happily agreed to that, with the wisdom so often seen in her eyes. After that, she was always “sitting there waiting for me”!  Now you know why I needed her help in Math…DUH!! Once we met, we always walked back to her house, which was bursting at the seams with all of her siblings and so full of the sense of “family” with more than enough love to go around. As I reiterated to some members of her family, and specifically to her sweet Mom…WHEN I TAKE MY LAST WALK, I AM ABSOLUTELY TOTALLY UNEQUIVICALLY POSITIVE THAT NAN WILL MEET ME HALF WAY.  Heaven is a much better place now because they have a new special angel. I will miss you my friend…..

Friday, 02 February 2007

  • Anyone Remember Me?

    I wouldn't blame a single soul for forgetting who I am or what I am about. I have no excuse good enough for my lack of communication and I know "Sorry" just doesn't cut it so I will just go on with an update. First of all, we had a wonderful Christmas. It was laid back and traditional and family oriented. I didn't have to worry about a spouse blowing up or trying to act surprised and "pleased " with the black hunting underwear that was under the tree for me in a size way to big "in case anyone else in the house might need it". Can't believe I put up with all that for so many years.  I received so many pretty things that were picked out just for me and me alone. It was awesome!  I must mention my very favorite and very generous gift. It is a PINK razor phone with Bluetooth technology. It will download movies and will get 10 TV channels. Of course it has a camera and unlimited video but the Bluetooth really freaks me out! I put that little gizmo in my ear and can receive calls and make calls without touching the phone in my pocket. It is so cool and to all those folks out there who point fingers and make comments about the "old lady talking to herself"........Bleep you, you technological idiots!!    Suppose I ought to update the health stuff. Of course the worst is over but am still dealing with the "fallout". I went to the ENT that Dr. Becht sent me to. He decided that the ulcer needed debreeding and because of it's location, it would require surgery. He compared it to the coring of an apple. Those of you who know me, know that I used to live in the middle of an apple orchard and had my kitchen totally decorated with apple things. (right down to the little wooden apples that served as knobs on the cupboards) I have always loved apples and have cored gazillions of them in my life, but after that surgery, I now RESPECT apples. Got the surgery over and had to wait for my post op exam a week later before I could start with the wound center and the hyperbaric chamber therapy. Went back for the post op exam and he discovered that my Eustacian tubes (sp?) had been damaged by the radiation. I was surprised to learn that, even though the radiation was intensely directed at the tumor, it also affects other parts of the body that have to be dealt with as you recover. Anyway, I couldn't do the chamber with all that pressure on my ears with the tubes not working. Those tubes are what makes your ears "pop" when you fly so if I did the hyperbaric dive without them, my eardrums would have exploded.  That doesn't even SOUND pretty. (pardon the pun) Sooooo had to have tubes put in my ears. He did it right in the office and it wasn't bad. Voices sound a little echo-y and every once in a while I hear a whoosh go past my ears but I have learned not to turn my head quickly to see what just went flying by.  That just gives more ammunition to the people who think the old lady is talking to herself!  I started the hyperbaric chamber treatments on Tuesday so I have 4 out of 40 under my belt. I was a bit shocked when they told me it would be 40 treatments but you have to do what you have to do.  It is 5 days a week and takes up a good part of the day.  It is a 45 minute to an hour drive to the hospital. You have to strip to your birthday suit and wear no jewelry or TEETH or hairspray or perfume or deodorant. It is just squeaky clean you and a special hospital gown made of some static free material. Before every "dive" you are examined by a doctor. Everything from your temp to your BP is checked and if there is anything that is less than perfect, the dive is canceled. Once you get in the chamber, it takes about 30minutes to reach the prescribed depth. The actual saturation time is 90 minutes but every 30 minutes you have to put on a mask and breath "room air" because pure oxygen is toxic.  Who would ever think that? It takes another half hour to "bring you up" out of the dive and then the doctor does a complete checkup again. It doesn't hurt and they wrap you in blankets so it is nice and warm and comfortable. The chamber is a big glass tube so even though it is an MRI type of cylinder, it does not seem so confining. There is a TV screen above the chamber and they pipe in the sound as well as the technicians voice who continues to monitor you and make sure you are okay.  There has never been an explosion in the United States. (it would take out the whole hospital) They had one a couple of months ago in Japan. A guy snuck his IPod in there and as soon as he hit the on button, the whole hospital was rubble. For those of you who are comtemplating buying an IPod, here is a consumer report. The darn IPod was found unscathed in what used to be the hospital parking lot!  Now THAT was a good investment, had he not misused the access to it.  I will be done these treatments sometime in April. Good grief! I left home April, 2006. Can't believe a whole year will have passed and I am still dealing with this stuff. Guess it is better that the alternative huh folks!!  I really need to back out of this. Have more things to share but the laptop is getting hot and it has been shutting off on me lately so would hate to lose all this. Just a note to ask you to pray for Becky's friend Ellen. They have been friends forever and Ellen has been diagnosed with breast cancer and has already had a lumpectomy and 14 lymph nodes removed. She has radiation and chemo ahead of her. She is a wonderful human being and has always lived a wholesome and healthy life.  Cancer isn't picky about it's victims I guess.  Please know that I think about all of you so often (even if I don't show it) and I am secure in your love and support.  Linda

Saturday, 23 December 2006

  •  linda11111122

    Thought I had best get an update in here as the next few days are busy busy busy. I finished up the last of the cookies yesterday so the cookie cutters are put away for another year. We went to the local tree farm and cut down our own tree a couple of weeks ago. I haven't done that in years but it is tradition around here. Even the dogs went!

    Angel

    Raindeer

    I totally hate the cold so I was a bit reluctant to go as it had just snowed. Becky said "After what you have been through this year, a little snow ISN'T GOING TO KILL YOU!! She was right. It was great and we all had such a good time. That wasn't the only Christmas adventure we had this year. We went on the Polar Express. For those of you that are familiar with the book or the movie, it was exactly that type of experience. We drove 90 minutes to board a real steam engine train. It took us through the woods and to the North Pole. When we got off the train, we were greeted by lots of elves who carried lanterns and guided us up the long winding path  to the North Pole. There we went into a theater type of place. It was like a theater in the round type of thing, only there were no seats. The audience sat on carpeted steps that surrounded the stage. After we were all seated, an "Old Story Teller" came out on stage in his bathrobe and slippers. As he read us the Polar Express book, a big screen in back of him displayed the pictures that were in the pages of the book. As he flipped the pages, the screen changed also. It was awesome!  Of course then Santa came out to see us and walked through the audience trying to shake hands or at least acknowledge every child there. It was so heartwarming to watch the looks of wonder and total belief on the faces of the kids.  Most of them wore PJ's because "Santa loves PJ's". We took Jordan of course as well as my other daughter's child and a friend of Jordan's. Of course we took lots of pictures. This is Becky and Timmy and 3 of the children they took..

    Polar Express

    This is a picture of all four of the children they took.....

    Polar Express4

    I have one more piece of news to share and then I will let all of you who get "stuck" reading my ramblings to get back to your life. I had a appointment with Dr. Becht this week. The ulcer that has replaced my tumor has gotten much worse and Dr. Becht thinks it has eaten it way to my jaw bone. Not a good thing as my jaw bone is a bit fragile right now from all the radiation.  He said he was sure it wasn't a return of the cancer as he rechecked the last PET scan and it was truly clear of active cancer cells. However, an infection of the jaw bone will be very hard to treat. Soooooooo I have an appointment the day after Christmas for a CT scan of the jaw bone and then an appointment on Thursday with an ENT specialist to see what he would recommend. Dr. Becht said he thinks I am going to have to have hyperbaric chamber treatments in order to heal that ulcer and stop it from continuing on it's merry way. The chamber is what they use to "decompress" deep sea divers but they have discovered that it is really helpful in the healing of wounds also. I don't know too much about it yet but it has something to do with putting me in a chamber where the atmospheric pressure is increased five times above normal pressure and the chamber is full of pure oxygen. Something about the pressure forcing the oxygen through the body and letting it completely be absorbed by compromised tissue. There can be some pretty nasty side effects but as you can tell, I don't know that much about it yet so I will cross that bridge when I come to it.  For right now, I am going to kick back and just enjoy the wonders of a Christmas I wasn't supposed to see. May all of you do the same. Don't forget to pass out the gift of hugs and appreciation to those you love. Close your eyes and fold your arms in front of you. Can you feel it?? That is my hug to you!   I love  you all.........

     

     

     

Sunday, 03 December 2006

  • Hi All !!

    Terribly busy time of year so I am doing this update on a Sunday morning at 4:30 a.m.  Seems like it is the only time of day when the mind is clear (as clear as it gets) and the body is rested. First of all, I would like to thank Becky for putting the slide show on here for me. By the time I figured it out, the new year would be here. She did it in 5 minutes. She is good at the techy stuff. That's one benefit in this age of technology. If you have children, you HAVE to keep up on the cyber things in order to keep up (and monitor) the kids. Things continue to go well for me.  The house was closed on Friday so that is over. The ex will pay rent to the new owner to live there for the winter. I hate the idea of him getting to stay in the house my parents built . I left in April 2006 and he has to leave in April 2007 so he is getting a whole extra year there. Of course now that my belongings are out of there, it doesn't sting quite so much. I will just be glad when there is somebody in that house that can create HAPPY memories there.  I am starting my descent into the world of cookies. I have about 20 dozen sugar cookies done and waiting to be frosted. Today I will do the Hershey's Kiss cookies and the marshmallow chocolate fudge. For those of you who don't know me, 20 dozen sugar cookies is just a drop in the bucket. Long long way to go yet but I will get there eventually. I love doing my Christmas baking so it is a fun time for me. I am so grateful to be HERE. If I were still in NY, we wouldn't be doing Christmas at all this year, so it is nice to be safe and warm and surrounded by Christmas music while I bake. Of course I don't know what happened to me yesterday. I have all the baking and wrapping and preparation to do for Christmas so I got up yesterday morning and ended up changing the furniture around in my room. Why?? I haven't a clue, but if anyone finds my priorities lying around out there, could you please return them to me? Well, I like to hear the sound of the spinning mixer before daylight so I need to get at it. I hope everyone is well and happy and doing the HO HO HO thing. Will try to get back here sooner. Love to all......PS: Becky and I went to a craft fair and I pulled on her sleeve and begged with the PLEAE PLEASE PLEASE routine in order to get her to have our picture taken with Santa. She told Santa that she was nearly 40 years old and her Mother was STILL making her get her picture taken with Santa. Santa said "Ho ho ho. That's a GOOD thing."

    Linda Becky Santa

     

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lindasjourney

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    • Country: United States
    • State: New Hampshire
    • Metro: Dover
    • Birthday: 7/26/1947
    • Gender: Female
    • Member Since: 5/7/2006

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  • I'm Linda. I am living with my daughter and her family in NH right now as I pursue radiation treatment for tonsilar squamous cell carcinoma.

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